Utilize este identificador para referenciar este registo:
http://hdl.handle.net/10071/34068
Autoria: | Freitas, C. Silva, S. Maia, T. Amorim, M. |
Editor: | Yves Charpak Denis Zmirou-Navier Dineke Zeegers Paget |
Data: | 2019 |
Título próprio: | Public participation in health data governance: A scoping review |
Volume: | 29 |
Título e volume do livro: | European Journal of Public Health |
Paginação: | 238 - 239 |
Título do evento: | 12th European Public Health Conference: Building bridges for solidarity and public health |
Referência bibliográfica: | Freitas, C., Silva, S., Maia, T., & Amorim, M. (2019). Public participation in health data governance: A scoping review. European Journal of Public Health, 29(4),238-239. https://doi.org/10.1093/eurpub/ckz185.647 |
ISSN: | 1101-1262 |
DOI (Digital Object Identifier): | 10.1093/eurpub/ckz185.647 |
Resumo: | The sheer growth of the health data shared and traded globally holds great promise and menace to public health. Big health data can foster scientific advancements with potential to heal millions across the globe. However, inerasable digital footprints left by the use of apps and digital services challenge people’s privacy and autonomy in (un)foreseeable ways that may cause them to stop sharing data. While many argue that public participation in data governance is a right, others view it as a means to increase data subjects’ recruitment and amass large quantities of data. Little systematic knowledge exists, however, about the arguments for and impact of public participation on health data policy and management. |
Arbitragem científica: | yes |
Acesso: | Acesso Aberto |
Aparece nas coleções: | CIES-CRI - Comunicações a conferências internacionais |
Ficheiros deste registo:
Ficheiro | Tamanho | Formato | |
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conferenceObject_67601.pdf | 143,49 kB | Adobe PDF | Ver/Abrir |
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