Please use this identifier to cite or link to this item: http://hdl.handle.net/10071/34068
Author(s): Freitas, C.
Silva, S.
Maia, T.
Amorim, M.
Editor: Yves Charpak
Denis Zmirou-Navier
Dineke Zeegers Paget
Date: 2019
Title: Public participation in health data governance: A scoping review
Volume: 29
Book title/volume: European Journal of Public Health
Pages: 238 - 239
Event title: 12th European Public Health Conference: Building bridges for solidarity and public health
Reference: Freitas, C., Silva, S., Maia, T., & Amorim, M. (2019). Public participation in health data governance: A scoping review. European Journal of Public Health, 29(4),238-239. https://doi.org/10.1093/eurpub/ckz185.647
ISSN: 1101-1262
DOI (Digital Object Identifier): 10.1093/eurpub/ckz185.647
Abstract: The sheer growth of the health data shared and traded globally holds great promise and menace to public health. Big health data can foster scientific advancements with potential to heal millions across the globe. However, inerasable digital footprints left by the use of apps and digital services challenge people’s privacy and autonomy in (un)foreseeable ways that may cause them to stop sharing data. While many argue that public participation in data governance is a right, others view it as a means to increase data subjects’ recruitment and amass large quantities of data. Little systematic knowledge exists, however, about the arguments for and impact of public participation on health data policy and management.
Peerreviewed: yes
Access type: Open Access
Appears in Collections:CIES-CRI - Comunicações a conferências internacionais

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