Utilize este identificador para referenciar este registo: http://hdl.handle.net/10071/32891
Autoria: Silva-Ribeiro, S.
Bernardes, S. F.
Marques, M. M.
Godinho, C. A.
Data: 2024
Título próprio: Maintaining a sense of normality with the help of others: Lived experiences of facilitators and barriers to Lupus adjustment
Título da revista: Journal of Health Psychology
Volume: N/A
Referência bibliográfica: Silva-Ribeiro, S., Bernardes, S. F., Marques, M. M., & Godinho, C. A. (2024). Maintaining a sense of normality with the help of others: Lived experiences of facilitators and barriers to Lupus adjustment. Journal of Health Psychology. https://doi.org/10.1177/13591053241296190
ISSN: 1359-1053
DOI (Digital Object Identifier): 10.1177/13591053241296190
Palavras-chave: Chronic illness
Illness adjustment
Quality of life
Qualitative methods
Systemic lupus erythematosus
Resumo: Systemic lupus erythematosus (SLE) has a high detrimental impact on individuals’ quality of life. Identifying key factors associated with SLE adjustment is crucial for intervention development, yet there is no previous research exploring the perspectives of individuals with SLE regarding illness adjustment’ facilitating or hindering factors. In this qualitative study, 16 individual semi-structured interviews with Portuguese adults with SLE (13 women) were conducted to explore perceived facilitators and barriers to illness adjustment. A reflexive thematic analysis revealed that efforts toward maintaining a normal life, optimism, keeping engaged in meaningful activities, accessing reliable illness-related information, and having supportive relationships were core facilitators of SLE adjustment. Main barriers included inability to maintain normality, engaging in excessive activity, pessimism, being unsupported or stigmatized, and not having access to reliable illness-related information. These findings unveil potential targets for psychosocial and behavioral interventions aimed at enhancing the quality of life for individuals with SLE.
Arbitragem científica: yes
Acesso: Acesso Aberto
Aparece nas coleções:CIS-RI - Artigos em revistas científicas internacionais com arbitragem científica

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