Utilize este identificador para referenciar este registo:
http://hdl.handle.net/10071/27410
Autoria: | Riso, B. Águas, C. |
Data: | 2022 |
Título próprio: | Digital informed consent: Possibilities and challenges in biobanks for health research |
Título da revista: | Cadernos de Saúde Societal |
Número: | 3 |
Paginação: | 53 - 62 |
Referência bibliográfica: | Riso, B., & Águas, C. (2022). Digital informed consent: Possibilities and challenges in biobanks for health research. Cadernos de saúde societal: transformação digital e inclusão na saúde, 3 , 53-62 |
ISSN: | 2184-9676 |
Palavras-chave: | Healthcare Digital informed consent Dynamic consent Biobanks Health research |
Resumo: | Biobanks are key infrastructures in biomedical research, storing and providing biological samples, personal and clinical data. Informed con- sent is a central piece of the process, as a means to respect each parti- cipants’ dignity, integrity and to acknowledge their capacity to express autonomous decisions. Providing adequate information, while ensuring the voluntariness of their decision are essential to an effective consent. Requesting informed consent usually takes place in the context of heal- thcare, where paper forms are still widely preferred, when not manda- tory and when person to person relationships are crucial. As biobanks are moving fast to implement automated protocols from biological samples processing to data collection, it is relevant to discuss the challenges posed by the digitalization of informed consent. To this end, such transition will be critically discussed using dynamic consent as a starting point to highlight the opportunities of digital tools, but also the relevance of healthcare context. |
Arbitragem científica: | yes |
Acesso: | Acesso Aberto |
Aparece nas coleções: | CIES-RN - Artigos em revistas científicas nacionais com arbitragem científica |
Ficheiros deste registo:
Ficheiro | Tamanho | Formato | |
---|---|---|---|
article_93488.pdf | 157,61 kB | Adobe PDF | Ver/Abrir |
Todos os registos no repositório estão protegidos por leis de copyright, com todos os direitos reservados.