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http://hdl.handle.net/10071/24093
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Campo DC | Valor | Idioma |
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dc.contributor.author | Marques, S. C. S. | - |
dc.contributor.author | Doetsch, J. N. | - |
dc.contributor.author | Abate, G. | - |
dc.contributor.author | Brødsgaard, A. | - |
dc.contributor.author | Colombo, G. | - |
dc.contributor.author | Cuttini, M. | - |
dc.contributor.author | Pedersen, P. | - |
dc.contributor.author | Barros, H. | - |
dc.date.accessioned | 2022-01-14T12:01:12Z | - |
dc.date.available | 2022-01-14T12:01:12Z | - |
dc.date.issued | 2021 | - |
dc.identifier.issn | 1471-2288 | - |
dc.identifier.uri | http://hdl.handle.net/10071/24093 | - |
dc.description.abstract | Background: Retention of participants in cohort studies is a major challenge. A better understanding of all elements involved in participation and attrition phenomena in particular settings is needed to develop effective retention strategies. The study aimed to achieve an in-depth understanding of participant retention in longitudinal cohorts focusing on participants’ and researcher’s perspectives, across three diverse socio-geographic and cultural settings. Methods: This study used a triangulation of multi-situated methods to collect data on cohort studies of children born with less than 32 weeks of gestation in Denmark, Italy and Portugal. It included focus groups and individual semi-driven interviewing with involved key actors (i.e. parents, staff, healthcare professionals, researchers) and a collaborative visual methodology. A purposive sample of 48 key actors (n = 13 in Denmark; n = 13 in Italy; n = 22 in Portugal) was collected. A triangulation of phenomenological thematic analysis with discourse analysis was applied. Cross-contextual and context-specific situational elements involved in participation and attrition phenomena in these child cohorts were identified at various levels and stages. Results: Main findings included: situational challenges affecting potential and range of possibilities for implementation strategies (geopolitical environment, societal changes, research funding models); situational elements related to particular strategies acting as deterrents (postal questionnaires) and facilitators (multiple flexible strategies, reminders, regular interaction); main motivations to enrol and participate (altruism/solidarity and gratitude/sense of duty to reciprocate); main motivational deterrents to participate to follow-up waves (lack of bonding, insufficient feedback); entanglement of clinical and research follow-up as facilitator and deterrent. Conclusions: The multi-situated approach used, addressing the interplay of the lived experience of individuals, was of most value to understand participation variability under different implemented strategies in-context. Cross-contextual and context-specific situational elements that have been influential factors towards participation and attrition in the cohorts were identified. | eng |
dc.language.iso | eng | - |
dc.publisher | Springer Science and Business Media LLC | - |
dc.relation | UIDB/04750/2020 | - |
dc.relation | 733280 | - |
dc.rights | openAccess | - |
dc.subject | European cohorts | eng |
dc.subject | Longitudinal | eng |
dc.subject | Preterm children | eng |
dc.subject | Participation | eng |
dc.subject | Retention | eng |
dc.subject | Multi-situated qualitative study | eng |
dc.subject | Collaborative visual methods | eng |
dc.title | Understanding participation in European cohort studies of preterm children: The views of parents, healthcare professionals and researchers | eng |
dc.type | article | - |
dc.peerreviewed | yes | - |
dc.journal | BMC Medical Research Methodology | - |
dc.volume | 21 | - |
dc.number | 1 | - |
degois.publication.issue | 1 | - |
degois.publication.title | Understanding participation in European cohort studies of preterm children: The views of parents, healthcare professionals and researchers | eng |
dc.date.updated | 2022-01-14T11:55:30Z | - |
dc.description.version | info:eu-repo/semantics/publishedVersion | - |
dc.identifier.doi | 10.1186/s12874-020-01206-5 | - |
dc.subject.fos | Domínio/Área Científica::Ciências Médicas::Ciências da Saúde | por |
dc.subject.fos | Domínio/Área Científica::Ciências Sociais::Sociologia | por |
dc.subject.fos | Domínio/Área Científica::Ciências Sociais::Outras Ciências Sociais | por |
dc.subject.fos | Domínio/Área Científica::Ciências Sociais::Antropologia | por |
iscte.identifier.ciencia | https://ciencia.iscte-iul.pt/id/ci-pub-85382 | - |
iscte.alternateIdentifiers.wos | WOS:000607163600001 | - |
iscte.alternateIdentifiers.scopus | 2-s2.0-85099211961 | - |
Aparece nas coleções: | CRIA-RI - Artigos em revistas científicas internacionais com arbitragem científica |
Ficheiros deste registo:
Ficheiro | Descrição | Tamanho | Formato | |
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article_85382.pdf | Versão Editora | 606,32 kB | Adobe PDF | Ver/Abrir |
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