Public preferences for involvement in the governance of health data

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dc.contributor.authorFreitas, C.
dc.contributor.authorAmorim, M.
dc.contributor.authorTeles, E. L.
dc.contributor.authorMaia, T.
dc.contributor.authorMachado, H.
dc.contributor.authorSilva, S.
dc.date.accessioned2025-12-15T11:03:06Z
dc.date.available2025-12-15T11:03:06Z
dc.date.issued2020
dc.date.updated2025-12-15T11:01:54Z
dc.description.abstractPublic involvement in the governance of epidemiological and public health studies can foster needs-driven research, enhance participants’ recruitment, reduce attrition and improve the quality of and ethics in research and surveillance. However, it can also reinforce health inequalities if it fails to ensure public representation across socioeconomic gradients. This study aimed to assess patients’ and carers’ preferences for involvement in collective health data governance, and its associated factors, to strengthen the evidence base for policy development.eng
dc.description.versioninfo:eu-repo/semantics/publishedVersion
dc.event.date2020
dc.event.title16th World Congress on Public Health 2020 Public Health for the future of humanity: Analysis, advocacy and action
dc.event.typeConferênciapt
dc.identifier.citationFreitas, C., Amorim, M., Teles, E. L., Maia, T., Machado, H., & Silva, S. (2020). Public preferences for involvement in the governance of health data. European Journal of Public Health. 30(5), v294-v295. https://doi.org/10.1093/eurpub/ckaa165.801
dc.identifier.doi10.1093/eurpub/ckaa165.801
dc.identifier.issn1101-1262
dc.identifier.urihttp://hdl.handle.net/10071/35745
dc.language.isoeng
dc.paginationv294 - v295
dc.peerreviewedyes
dc.publisherOxford University Press
dc.relationinfo:eu-repo/grantAgreement/FCT/Concurso de avaliação no âmbito do Programa Plurianual de Financiamento de Unidades de I&D (2017%2F2018) - Financiamento Base/UIDB%2F03126%2F2020/PT
dc.relation.ispartofEuropean Journal of Public Health
dc.rightsopen access
dc.subject.fosDomínio/Área Científica::Ciências Médicas::Ciências da Saúdepor
dc.titlePublic preferences for involvement in the governance of health dataeng
dc.typeconferenceObject
dc.volume30
dspace.entity.typePublicationen
iscte.alternateIdentifiers.wosWOS:000605268701472
iscte.identifier.cienciahttps://ciencia.iscte-iul.pt/id/ci-pub-81915

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