Please use this identifier to cite or link to this item: http://hdl.handle.net/10071/26158
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dc.contributor.authorRiso, B.-
dc.date.accessioned2022-09-22T13:41:02Z-
dc.date.available2022-09-22T13:41:02Z-
dc.date.issued2022-
dc.identifier.citationRiso, B. (2022). “Not storing the samples it’s certainly not a good service for patients”: Constructing the Biobank as a health place. Societies, 12(4): 113. http://dx.doi.org/10.3390/soc12040113-
dc.identifier.issn2075-4698-
dc.identifier.urihttp://hdl.handle.net/10071/26158-
dc.description.abstractBiobanks have been established from the beginning of the millennium as relevant infrastructures to support biomedical research. These repositories have also transformed the paradigm of collecting and storing samples and associated clinical data, moving these practices from the healthcare services and research laboratories to dedicated services. In Portugal, the establishment of biobanks is happening in the absence of a specific legal framework, turning it difficult to fully understand the scope of their action. This ethnographic research explored how establishing a biobank challenges the dynamics between healthcare and biomedical research. The ethnography intended to follow the path of biological samples from the hospital, where they were collected, to the biobank in a research institute, where they were stored. Findings suggest that although the nature of the biobank’s technical work seemed to inscribe it as a research-oriented setting, the biobank’s daily work was performed through symbolic action in the logic of care. Biobank staff constantly recalled the human nature of the samples, and they built complex illness narratives of each sample, promoting a connection with the absent donor. These practices were crucial to constructing the biobank as a health place, one that was designed to be life-saving in the near future.eng
dc.language.isoeng-
dc.publisherMDPI-
dc.relationinfo:eu-repo/grantAgreement/FCT/OE/SFRH%2FBD%2F100779%2F2014/PT-
dc.relationinfo:eu-repo/grantAgreement/FCT/6817 - DCRRNI ID/UIDB%2F03126%2F2020/PT-
dc.relation952377-
dc.rightsopenAccess-
dc.subjectBiobankeng
dc.subjectHealtheng
dc.subjectHuman biological sampleseng
dc.subjectBiomedical researcheng
dc.subjectEthnographyeng
dc.subjectCaring practiceseng
dc.subjectIllness narrativeseng
dc.subjectPortugal (Study context)eng
dc.title“Not storing the samples it’s certainly not a good service for patients”: Constructing the Biobank as a health placeeng
dc.typearticle-
dc.peerreviewedyes-
dc.volume12-
dc.number4-
dc.date.updated2022-09-22T14:39:33Z-
dc.description.versioninfo:eu-repo/semantics/publishedVersion-
dc.identifier.doi10.3390/soc12040113-
dc.subject.fosDomínio/Área Científica::Ciências Sociais::Sociologiapor
iscte.subject.odsSaúde de qualidadepor
iscte.subject.odsIndústria, inovação e infraestruturaspor
iscte.identifier.cienciahttps://ciencia.iscte-iul.pt/id/ci-pub-90846-
iscte.alternateIdentifiers.wosWOS:000845245600001-
iscte.alternateIdentifiers.scopus2-s2.0-85136783477-
iscte.journalSocieties-
Appears in Collections:CIES-RI - Artigos em revistas científicas internacionais com arbitragem científica

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